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TikTok star, 19, dies losing battle to make it to Xmas amid super-aging disease


TikTok star, 19, dies losing battle to make it to Xmas amid super-aging disease

TIKTOK star Beandri Booysen has tragically died at the age of 19 after battling a super-aging disease.

Booysen was not expected to live past 14 but refused to give up and became an internet sensation.

Just two months ago, the teenager underwent an open-heart surgery - and was determined to enjoy Christmas with her parents.

She was born with the rare disease called Hutchinson-Gilford progeria syndrome which causes fast ageing in children and also suffered from osteoporosis which makes bones brittle and break.

Only one in 4 million babies are born with the incurable defect and Beandri was just one of 200 known sufferers in the world.

Beandri's mum Bea confirmed that she had lost her battle for life yesterday and thanked all her fans worldwide for "loving her deeply".

She said: "It is with deep sadness that we announce the passing of Beandri one of South Africa's most beloved and inspiring young women who always radiated hope and joy.

"Beandri was known for her vibrant personality and infectious laugh and as the last surviving individual in South Africa living with the rare genetic condition Progeria.

"She became a symbol of awareness for Progeria and other special needs children using her unique spirit to inspire thousands worldwide. She never stopped fighting".

More to follow... For the latest news on this story keep checking back at The Sun Online

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